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Psychosocial Burdens among Caregivers of Patients with Renal Failure in Al-Diwaniyah Government

    Hussein Hadi Hussein Al badiri Raad K Faraj

Mosul Journal of Nursing, 2022, Volume 10, Issue 3, Pages 104-111
10.33899/mjn.2022.175406

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Abstract

Objective(s): The purpose of this study is to assess the level of psychosocial burden among caregivers of patients with renal failure. The study began on October 13th, 2021 and will conclude on May 18th, 2022. Methodology: The design is carried out is A descriptive correlation design. The study is being conducted in Al Diwaniyah City's male and female caregivers of patients with renal failure. We select a non-probability convenience sample of (210) caregivers . The study will use a Zarit Burden Interview (ZBI) questionnaire that is divided into two sections: part I will examine the sociodemographic characteristics of patients with renal failure and part II will examine the sociodemographic characteristics of caregivers and Zarit Burden Interview (ZBI) questionnaire that used to measure the degree of burden for caregiver during caring of Patients with Renal Failure.. A pilot study is used to determine the content validity and internal consistency reliability. The study instrument is used to collect data. The descriptive statistical data analysis approach is used to analyze the data, while the inferential statistical data analysis approach is used to analyze the data.
 The results of the study included that (74.8%) of the caregivers of patients with renal failure suffered from moderate to severe burden levels towards caring for their patients.
Conclusion:  the major psychosocial burdens of caregivers that results from caring of there patients with renal failure according to the study resulting that renal failure is a stress for each patients and there caregivers.
Recommendations:  in this study included that caregivers should be given more attention in terms of burden assessment and burden reduction measures.
Keywords:
    Psychosocial Burden Caregiver Renal failure

Psychosocial Burdens among Caregivers of Patients with Renal Failure in Al-Diwaniyah Government

Hussein H. Hussein , MSc.S 1, Raad K. Faraj, PhD 2 *

 

  1. Department of community health nursing, College of Nursing, University of Baghdad, City of Baghdad, Iraq;
  2. Department of Medical Sciences, College of Nursing, University of Baghdad , City of Baghdad, Iraq.

 

Corresponding author: Hussein Hadi Hussein

Email: Hussein.Hadi1206a@conursing.uobaghdad.edu.iq

ABSTRACT

Objective(s): The purpose of this study is to assess the level of psychosocial burden among caregivers of patients with renal failure. The study began on October 13th, 2021 and will conclude on May 18th, 2022. Methodology: The design is carried out is A descriptive correlation design. The study is being conducted in Al Diwaniyah City's male and female caregivers of patients with renal failure. We select a non-probability convenience sample of (210) caregivers . The study will use a Zarit Burden Interview (ZBI) questionnaire that is divided into two sections: part I will examine the sociodemographic characteristics of patients with renal failure and part II will examine the sociodemographic characteristics of caregivers and Zarit Burden Interview (ZBI) questionnaire that used to measure the degree of burden for caregiver during caring of Patients with Renal Failure.. A pilot study is used to determine the content validity and internal consistency reliability. The study instrument is used to collect data. The descriptive statistical data analysis approach is used to analyze the data, while the inferential statistical data analysis approach is used to analyze the data.

 The results of the study included that (74.8%) of the caregivers of patients with renal failure suffered from moderate to severe burden levels towards caring for their patients.

Conclusion:  the major psychosocial burdens of caregivers that results from caring of there patients with renal failure according to the study resulting that renal failure is a stress for each patients and there caregivers.

Recommendations:  in this study included that caregivers should be given more attention in terms of burden assessment and burden reduction measures.

Keywords:  Psychosocial Burden, Caregiver, Renal failure  

 

Received: 09 April  2022, Accepted: 25 June 2022, Available online: 21 August 2022


 


INTRODUCTION

 

 

People around the world are affected by chronic kidney disease (CKD), a severe public health problem. An abnormally low glomerular filtration rate, along with diminished kidney function in the areas of regulation, excretion, and endocrine, serve as diagnostic indicators. Patients who have glomerular filtration rates of less than 15 ml/hour/1.73 m2 must receive dialysis in order to live (Frazao et al., 2014).

End-stage renal disease (ESRD) may affect the function of many systems in the body, such as the cardio-pulmonary, gastro-intestinal, muscular-skeletal, nervous system, skin, and reproductive system, while the urine retention and accumulation of nitrogen substances and materials in the blood may be the main symptoms (Smeltzer et al., 2015).

End-stage renal disease (ESRD) may develop as a result of another disease, such as diabetes mellitus, hypertension, renal-vascular disorder, immunologic disorder, lupus erythematosus, tuberculosis, urinary tract obstruction, and obesity, and may progress to prostate and urethral disorders, as well as congenital kidney anomalies. End-stage renal disease is the final stage of chronic kidney disease when the kidneys are unable to function adequately to meet daily needs. Thus, renal replacement therapy is required at this point to ensure survival, and hemodialysis (HD) is considered critical and plays a significant role in extending patients' lives. When HD patients were compared to healthy members of the general population and renal transplant recipients, a significant impairment of renal function was seen (Levey et al., 2015).

Hemodialysis, is a way to clean someone's blood when their kidneys aren't working right. When the kidneys are failing, this type of dialysis removes waste products like creatinine and urea, as well as free water, from the blood outside of the body. Hemodialysis is one of three ways that the kidneys can be replaced (the other two being kidney transplantation and peritoneal dialysis). Apheresis is another way to separate blood components like plasma or cells outside of the body (Bresn, 2017).

Caregivers are those who provide assistance to those in need during times of distress or illness. Their importance becomes more apparent in the event of chronic conditions such as renal failure. They encounter numerous obstacles when it comes to providing high-quality care to their patients. Caregiver load is a term that refers to the extreme stress or strain that someone who is caring for another person who is ill endures. A person caring for someone with a chronic illness, such as renal failure, may face difficulties related to finances, physical strain, mental health, the care receiver's relationship, and social support. The cost of treating the disease and its complications places a major financial burden on renal failure patients Additionally, it places a considerable load on their carers and the broader society (Joy et al., 2019).

Caregiver burden has two objective and subjective dimensions: objective caregiver burden can be considered as duration and the level of effort required to meet the needs of others, which includes the problems related to financial, family, and social costs; and the subjective health burden refers to the level of experience of the caregiver in facing objective caregiver burden, which includes emotional and behavioral problems caused by disease (Bamari et al., 2016).

METHOD

A descriptive correlation study design was carried out. The study was conducted among caregivers of patients with Renal failure living in the urban and rural area, Iraq / AL Diwaniyah.. A non-probability convenience sample of (210) caregiver were selected. All caregivers who agreed to participate in the study signed a consent form.

The study will use a self-reported questionnaire that is divided into two parts: (part one is related to the demographic information of Patients who have Renal failure ). Part two, Firstly is related to caregiver's demographic data and Secondly is consists of Zarit scale (22 questions). The content validity is determined by an expert panel, and the internal consistency reliability of the questionnaire depends on the reliability of the Cronbach's alpha correlation coefficient in a pilot study.

    The study instrument is used to collect data. The descriptive statistical data analysis approach is used to analyze the data, while the inferential statistical data analysis approach is used to analyze the data.

RESULTS

Table (1): This table represents the descriptive statistics of socio-demographic information of the patient with renal failure in term of frequencies and percentage. Out of (210) Patients participating in this study, their age ranged from 51 to 61years old and made up (22 percent) of the total number of participants. In terms of gender, male patients were predominant and made up more than half in compared with female, it composes (51.4%). Marital status related to the findings, patients were demonstrated as married and constituted the higher percentage (58.6%), It is clear from the findings that majority of study sample were Read and write , it reflected (37.1 percent) out total number,. The findings show the distribution of the studied sample according to the number times of HD per week e, results show that most of the patients go to Hemodialysis three times per week (86.2 percent).

 Table (2): This table represents the distribution of the patient's caregiver their demographic characteristics in term of frequencies and percentage The caregiver's ages in study ranged from 19 to 29 years it composes (30.5 %)., while the Gender related to results showed that male caregiver predominated in the sample , accounting for 56.7 % of the total. In terms of education, 22.4 percent who are Read and write in study results . In regards with the number of family members , the showed that majority (59 %) of study sample were contains from 3 to 6 members in the family. Marital status related to the findings, caregiver were demonstrated as married and constituted the higher percentage (71.4 %), The most the of study finding unemployed or house wife (33.8 % ) with Hardly enough of monthly income (60%). Were more half of the study sample living in city (70%0), in which ( 63.8) of them Permanent Accommodation.

Table (3): In the light of statistical analysis cut off point, this table illustrated the items of Psychosocial Burden scale towards caring patients with renal failure where it ranges between No to sever Burden. The study results indicate that the majority of items (45%) were moderate burden level Except item (5, 6,9,11,13,16,18,19) were mild burden (37%), and item ( 14, 8, 7) were sever burden (13.5%) , While item number (4) were sever burden (4.5%).

 

 

Table (1): Descriptive Statistic of Socio-Demographic Characteristic of the Patients with Renal failure.

Demographic Data

Groups

 

Freq.

%

Age in years

7 to 17

10

4.8

18 to 28

37

17.6

29 to  39

29

13.8

40 to 50

44

21.0

51 to 61

46

21.8

62 to 72

34

16.2

73 to83

10

4.8

Total

210

100.0

Gender

Male

108

51.4

female

102

48.6

Total

210

100.0

educational level

neither can read nor write

50

23.8

Read and write

78

37.2

Primary school

20

9.5

Middle school.

29

13.8

Secondary school.

8

3.8

Institute.

11

5.2

College/ Master’s Degree

14

6.7

Total

210

100.0

Marital Status

 

Single

45

21.4

Married

123

58.6

Divorced

14

6.7

Widow.

28

13.3

Total

210

100.0

number times

of HD per week

2

29

13.8

3

181

86.2

Total

210

100.0

 

Table (2): Descriptive Statistic of Socio-Demographic Characteristic of the caregiver for Patients with Renal failure

Demographic Data

Groups

 

Freq.

%

Age in years

19 to 29

64

30.5

30 to 40

56

26.6

41 to 51

55

26.2

52 to 62

31

14.8

63 to 73

4

1.9

Total

210

100.0

Gender

Male

119

56.7

Female

91

43.3

Total

210

100.0

the number

of family members

3 to 6

124

59.0

7 to 10

82

39.1

11 to 14

4

1.9

Total

210

100.0

Marital Status

Single /unmarried

51

24.3

Married.

150

71.4

Divorced.

2

1.0

Widow

7

3.3

Total

210

100.0

 

 

educational level

 

 

 

neither can read nor write

12

5.7

Read and write

47

22.4

Primary school

20

9.5

Middle school.

30

14.3

Secondary school

27

12.9

Institute

37

17.6

College/ Master’s Degree

37

17.6

Total

210

100.0

the work

 

Employee.

69

32.9

Freelance / work at home.

70

33.2

House wife/ unemployed

71

33.8

Total

210

100.0

monthly income

Enough

26

12.4

Hardly enough

126

60.0

Not enough

58

27.6

Total

210

100.0

living

City.

147

70.0

Countryside

63

30.0

Total

210

100.0

accommodation type

Permanent Accommodation

134

63.8

Rent.

28

13.3

Other

48

22.9

Total

210

100.0

who is the caregiver

Father

10

4.8

Mother

27

12.8

Brother

23

11.0

Sister

9

4.3

Husband

26

12.4

Wife

36

17.1

Son.

60

28.6

Daughter

19

9.0

Total

210

100.0

 

Table (3): Caregiver's Responses to the Psychosocial Burden

NO

Items

Mean

S.D.

Evaluation

1

Do you feel that your relative asks for more help than he/she needs?

2.06

.749

moderate to severe

2

Do you feel that because of the time you spend with your relative that  you don't have enough time for yourself?

2.15

.802

moderate to severe

3

Do you feel stressed between caring for your relative and trying to  meet other responsibilities for your family or work?

2.73

.729

moderate to severe

4

Do you feel embarrassed over your relative's behaviour?

.79

.652

little or no

5

Do you feel angry when you are around your relative?

1.21

.762

mild to moderate

6

Do you feel that your relative currently affects our relationships with  other family members or friends in a negative way?

1.30

.739

mild to moderate

7

Are you afraid what the future holds for your relative?

3.42

.615

Severe

8

Do you feel your relative is dependent on you?

3.21

.576

Severe

9

Do you feel strained when you are around your relative?

1.87

.704

mild to moderate

10

Do you feel your health has suffered because of your involvement  with your relative?

2.04

.691

moderate to severe

11

Do you feel that you don't have as much privacy as you would like

because of your relative?

1.67

.679

mild to moderate

12

Do you feel that your social life has suffered because you are caring

for your relative?

2.40

.597

moderate to severe

13

Do you feel uncomfortable about having friends over because of your

relative?

1.38

.616

mild to moderate

14

Do you feel that your relative seems to expect you to take care of  him/her as if you were the only one he/she could depend on?

3.02

.614

severe

15

Do you feel that you don't have enough money to take care of your  relative in addition to the rest of your expenses?

2.86

.844

moderate to severe

16

Do you feel that you will be unable to take care of your relative much  longer?

1.43

.863

mild to moderate

17

Do you feel you have lost control of your life since your relative's  illness?

2.11

.672

moderate to severe

18

Do you wish you could leave the care of your relative to someone  else?

1.14

.780

mild to moderate

19

Do you feel uncertain about what to do about your relative?

1.89

.865

mild to moderate

20

Do you feel you should be doing more for your relative?

2.50

.843

moderate to severe

21

Do you feel you could do a better job in caring for your relative?

2.01

.795

moderate to severe

22

Overall, how burdened do you feel in caring for your relative?

2.60

.620

moderate to severe

 

N (210 ), cut off point (0.99), little or no (mean of score 0-.99), mild to moderate (mean of scores (1- 1.99), moderate to severe (mean of score 2 -2.99), severe (mean of score 3- 4)

Findings indicate that the (74.8 %) of caregiver were moderate to severe burden  level    towards   caring patients with renal failure, followed by those who were mild to moderate burden  (23.3 % ), and followed by those who were severe burden (1.9 %).

 

      Figure 1: Distribution of Study Sample (caregivers ) by Psychosocial Burden 

 

 

 

DISCUSSION

Part I: Discussion of the patient's Characteristics

Table (1) throughout the course of the data analysis of the present study, regarding the gender, the results were rather converging, the result reveals that the male is more than female, male (51.4 %) vs. (48.6 %) for females Table (1). We can conclude from these results this result reflects the higher prevalence of renal failure in males compared with females., as demonstrated by some researches and participants study renal failure disease such as Mashayekhi et al (2015) majority of patients were male (56.1%). It is possible these result can lead us to the fact that male are more likely than female to have renal failure disease in this region.

According to the patient’s age, the results showed that the predominant age of the study sample was (21.9%) and their ages were (51-61) years and (21%) with ages (40-50). This finding was reinforced by a study he conducted Rioux et al. (2012) where it was 52 ± 10 years.

Marital status related to the findings, patients were demonstrated as married and constituted the higher percentage (58.6%), which is consistent with a study performed by Mansour, (2013). The study showed that 67.30% of the patient were married. As it known that the effect of the persons marital status, but in light of the Iraqi culture, the marital status after disease may still continuing because of the strong sociocultural band in southern area of Iraq (researcher).

Concerning the educational levels of the patient’s, the greater number (37.1% ) of them read and write, and (23.8) not read and write that had low level of education. While the result obtained from the study done by Biniaz, et al., (2013), who found that the highest percentage (42%) of the study sample is of low level of education.

Such result is an ordinary outcome for our society because the largest number of families under the line of poverty with insufficient monthly income, poverty makes a large percentage of the population move away from education (researcher).

Relative to the number of hemodialysis per week, the results indicated that the majority of (86.2%) patients have done hemodialysis (3- 4) times per week.This finding agrees with the result obtained from the study done by Mashayekhi et al (2015). The authors showed that (86.3%) of the patient’s done hemodialysis 3times per week, also this result agrees with the National Kidney Foundation, (2015) which reported that the hemodialysis is classically done 3 times per week for about 4 hours at each time.

 

PartII: Discussion of Socio-Demographic Characteristics Related Caregiver of the Patients with Renal Failure

Table (2) the findings indicated that the majority of the gender (56.7%) were (males) of the entire sample this result is supported by the study conducted by Sharma et al (2021) who reported that the mostly (57%) of caregivers gender were male.

And that the majority of caregivers for the patients (37.6) were son/daughter, followed by spouse (wife/ husband ) represents (29.5%), this result is supported by the study conducted by hassan et al (2019) who mentioned that the greater number of caregivers (43.4%) were ( son/daughter ),and followed by (33.7%) were spouse.

According to the researcher, the general culture of Iraqi society, and the strength of family bonding among members of Iraqi families, the largest percentage of caregivers was their children. And because there was a high percentage of patients who were married, the highest percentage in the second place were married couples. Where it is their responsibility to take care of the family and the patient and visit the dialysis center.

Regarding the age of the caregiver, the predominant age group for the study sample (30.5%) is the age group (19-29) years , followed by (26.7%) is the age group (30-40), and followed by (26.2%) for the age group (41-51), While the study that conducted by Chhetri & Baral, (2020) That showed that (39.02%) is the predominant age group (20-39), and followed by (37.39%) for the age group (40-59).

With regard to the number of family members, the majority (59%) of the study sample contains 3 to 6 members of the family. This result was in line with the study that conducted by Cagan et al., (2018) that included less than half (44.17%) of the study sample had 1 to 2 children followed by (38.03%) of the study sample had 3 and more children .

In relation to levels of education, the results show that the majority of the study sample is Read and write (37.1%) Table (2). This result comes along with Bayoumi, (2014) who indicated that (44.0%) of the caregivers with Renal Failure patient were Basic/intermediate .

Table (2) shows that the majority of marital status (71.4%) are married. This result is in line with the general culture of our societies; where both males and females tend to marry early. This finding is consistent with Sharma et al (2021) who found that (73%) of the caregivers are married. The researcher believes that the present result is a product of the natural structure of families in our country which consists of father and mother and their children, all of whom live together. Therefore, the effect of patient with renal failure will be on the family bonding of that family.

Regarding to monthly income, the result of the data analysis showed that the majority of caregivers' monthly income (60%) was hardly enough, Table (2), and this result is consistent with Mollaoğlu (2013) the one who reported that (73.8%) ) of the sample belonged to families with a hardly enough amounts of income and Suffering from financial stress.

Researcher believes that the absence and weak government financial support for families of patients with Renal failure from social care networks and the poor economic situation that the country is going through are among the most important causes of financial stress for these families.

Concerning residency, more than two thirds of the study sample (70.0%) are from urban residential area. This result comes along with hassan et al (2019) whose findings indicated that the majority of the study subjects are (54.2%) were living in urban area. The researcher believes that one of the most important barriers families of patients with Renal failure and those living in rural areas is the difficulty of moving to and from the center due to the lack of transportation there, especially during the days of curfews by the government. Or because of bad weather or other obstacles that increase the burden on the provider and caregiver, which is obligatory to bring the patient to the dialysis center on the days specified for the patient to perform dialysis.

In terms of their occupation or the Job of Caregivers the results show that the highest percentage of the study sample (33.8) are Unemployed/ housewives. This result is consistent with Chhetri & Baral (2020) stated that most caregivers of patients with renal failure were the majority (47.15%) Unemployed. Also this result was similar to Bayoumi (2014) that showed (60.0%) are Unemployed/ housewives.

The researcher believes, that the largest percentage of caregivers for patients with kidney failure were that they Unemployed / housewives, because of their commitment to providing care for patients with kidney failure, which takes a lot of time, and thus the caregiver cannot commit to a specific work.

Finally, in relation to the Accommodation Type, the results show that the major group of the study sample (63.8%) are Permanent Accommodation [Table (2)].the researcher did not find a study that supports this result.

 

Part III:: Discussion of Psychosocial Burden among Family Caregiver of the Patient with Renal Failure

Figure (1) Shows that  the level of psychosocial burden among caregiver’s ranges between no, mild, moderate and sever. The majority of participants (74.8%) have a moderate to severe burden level of psychosocial burden, followed by those who were mild to moderate burden (23.3 % ), and followed by those who were severe burden (1.9 %). through the total scores concerning Likert scale.

This results have the same agreement with the study of Mashayekhi et al (2015) who reported the majority of caregivers of patients with renal failure, In this study (72.5%) of caregivers reported moderate to severe levels of caregiver burden.

the researcher's point of view, Renal failure disease is the leading cause of patient and caregiver burden. This may be related to the patients' requirements, which may include physical, mental, and emotional care. This necessitates that caretakers have significantly greater knowledge, skills, and obligations. These commitments can entail significant social and financial strain. Therefore, the person who cares for others has the biggest duty and does not care for himself.

 

CONCLUSIONS

The findings indicate that Caring for patients with renal failure is a main source at psychosocial burdens for caregivers. Results show that male patients were predominant and made up more than half in compared with female, it composes (51.4%). Majority of study sample were Read and write (Low level of education), The ages of the largest proportion of the sample ranged between 51 to 61.  The results showed that male caregivers were the most common caregivers, it composes (56.7%). The caregiver's ages in study ranged from 19 to 29 years it composes (30.5%). The most of the study finding unemployed or house wife (33.8%) with Hardly enough of monthly income (60%). 

 

ETHICALCONSIDERATIONSCOMPLIANCEWITHETHICALGUIDELINES

The study meets with a group of caregivers and after a covering letter begins, he explains to them about the research procedures and the purpose of the study before participating, and obtained oral consent from every care giver before collection the data. Patient’s caregiver ensured that the study will elevate the level of awareness about their conditions and will not cause any actual or potential harm for them. The researcher also explained to all caregiver that they can withdraw from the study at any time they want.

FUNDING
This study received no financing from public, private, or non-profit organizations.

AUTHOR’SCONTRIBUTIONS

Study concept; original draft writing; data collection; data analysis; and final edition review by all authors.

DISCLOSURESTATEMENT:

There are no conflicts of interest reported by the authors.

ACKNOWLEDGEMENTS

 First and foremost, I express my gratitude to Allah, the Most Merciful and Compassionate. In my endeavors, many people have aided and supported me. Thank you, especially, for everything you've done for me. Baghdad University/College of Nursing

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14. National Kidney Foundation, Inc, ̳NKF KDOQI Guidelines‘ 2016 [cited December 27, 2015]. Available at: http://www.kidney.org/professionals/kdoqi/guideline_uphd_pd_v a/v a_guide3.htm.

 

15. Rioux, J. P., Narayanan, R., & Chan, C. T. (2012). Caregiver burden among nocturnal home hemodialysis patients. Hemodialysis International, 16(2), 214-219.

 

16. Sharma, M., Lakhara, P., Kumar Sharma, S., Jelly, P., & Sharma, R. (2021). The burden of caregivers of patients undergoing hemodialysis. Journal of Holistic Nursing And Midwifery, 31(2), 69-75.

 

17. Smeltzer S, Bare B, Hinkle J, & Cheever K. (2015). Brunner & Suddarth's textbook of medical-surgical nursing (Vol. 1). Lippincott Williams & Wilkins; 9-2201.

 

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(2022). Psychosocial Burdens among Caregivers of Patients with Renal Failure in Al-Diwaniyah Government. Mosul Journal of Nursing, 10(3), 104-111. doi: 10.33899/mjn.2022.175406
Hussein Hadi Hussein Al badiri; Raad K Faraj. "Psychosocial Burdens among Caregivers of Patients with Renal Failure in Al-Diwaniyah Government". Mosul Journal of Nursing, 10, 3, 2022, 104-111. doi: 10.33899/mjn.2022.175406
(2022). 'Psychosocial Burdens among Caregivers of Patients with Renal Failure in Al-Diwaniyah Government', Mosul Journal of Nursing, 10(3), pp. 104-111. doi: 10.33899/mjn.2022.175406
Psychosocial Burdens among Caregivers of Patients with Renal Failure in Al-Diwaniyah Government. Mosul Journal of Nursing, 2022; 10(3): 104-111. doi: 10.33899/mjn.2022.175406
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6. Chhetri, S. K., & Baral, R. (2020). Caregiver Burden among Caregivers of Patient Undergoing Hemodialysis in Tertiary Care Center : A Descriptive Cross-sectional Study. JNMA; journal of the Nepal Medical Association, 58(223), 148–152. https://doi.org/10.31729/jnma.4779 .

 

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8. Hassan, A. B., Sharkawy, S. A., & Abo-Zaid, H. A. (2019). Family Caregivers' Burden of Hemodialysis Elderly Patients at Assiut City. Assiut Scientific Nursing Journal, 7(16), 73-79.

 

 

9. Joy, J., Abraham, P. M., & Gopalakrishnan, S. (2019). Burden and resilience in caregivers of patients on maintenance haemodialysis.

 

10. Levey, A. S., Eckardt, K. U., Tsukamoto, Y., Levin, A., Coresh, J., Rossert, J., & Eknoyan, G. (2015). Definition and classification of chronic kidney disease: a position statement from Kidney Disease: Improving Global Outcomes (KDIGO).Kidney international,67(6), 2089-2100.

 

11. Mansour, K. (2013). Assessment of patients' satisfaction toward nursing care at hemodialysis units. Iraqi National Journal of Nursing Specialties, 1(26), 1-9.

 

12. Mashayekhi, F., Pilevarzadeh, M., & Rafati, F. (2015). The assessment of caregiver burden in caregivers of hemodialysis patients. Materia socio-medica, 27(5), 333. https://doi.org/10.5455/msm.2015.27.333-336

 

13. Mollaoğlu, M., Kayataş, M., & Yürügen, B. (2013). Effects on caregiver burden of education related to home care in patients undergoing hemodialysis. Hemodialysis International, 17(3), 413-420.‏

 

14. National Kidney Foundation, Inc, ̳NKF KDOQI Guidelines‘ 2016 [cited December 27, 2015]. Available at: http://www.kidney.org/professionals/kdoqi/guideline_uphd_pd_v a/v a_guide3.htm.

 

15. Rioux, J. P., Narayanan, R., & Chan, C. T. (2012). Caregiver burden among nocturnal home hemodialysis patients. Hemodialysis International, 16(2), 214-219.

 

16. Sharma, M., Lakhara, P., Kumar Sharma, S., Jelly, P., & Sharma, R. (2021). The burden of caregivers of patients undergoing hemodialysis. Journal of Holistic Nursing And Midwifery, 31(2), 69-75.

 

17. Smeltzer S, Bare B, Hinkle J, & Cheever K. (2015). Brunner & Suddarth's textbook of medical-surgical nursing (Vol. 1). Lippincott Williams & Wilkins; 9-2201.

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